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December 3, 2017

Dravet Syndrome: Emerging Insights, New Treatment Approaches

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CME Dinner Symposium

Sunday, December 3, 2017
6:00 PM -- 6:30 PM On-site Check-in and Dinner
6:30 PM -- 8:00 PM CME Symposium

Walter E. Washington Convention Center--Salon C, Street Level
801 Mt Vernon Pl NW
Washington, DC


Linda C. Laux, MD (Program Chair)
Medical Director
Comprehensive Epilepsy Center
Assistant Professor of Pediatrics
Northwestern University
Feinberg School of Medicine
Chicago, Illinois

Kelly Knupp, MD, MSCS, FAES
Associate Professor of Pediatrics and Neurology
Neurology and Neurodiagnostics
Children’s Hospital Colorado
Anschutz Medical Campus
University of Colorado Denver 
Denver, Colorado
Lieven G. Lagae, MD, PhD
Professor of Paediatric Neurology
Director of Paediatric Neurology
University Hospitals Leuven – Paediatric Neurology
Leuven, Belgium
Joseph E. Sullivan, MD
Associate Professor of Neurology & Pediatrics
University of California, San Francisco (UCSF)
Director, UCSF Pediatric Epilepsy Center of Excellence
San Francisco, California
Nicole Villas, MEd
Board President
Dravet Syndrome Foundation
Cherry Hill, New Jersey


Dravet syndrome (DS), a rare form of epilepsy, occurs in approximately 1 in 20,000 live births and is associated with a significant humanistic and economic burden on caregivers, families, and patients. While many medications are used in treating the seizures associated with DS, there are currently no FDA-approved treatments, and nearly all patients continue to have uncontrolled seizures and other medical needs throughout their lifetime. Several investigational therapies are in late-stage development with the potential to provide new treatment options to address the serious medical needs for patients with DS.


6:00 PM – 6:30 PM
On Site Check-in and Dinner

6:30 PM – 6:40 PM
The State of Dravet Syndrome in 2017

Linda C. Laux, MD (Program Chair)

6:40 PM – 7:10 PM
The Humanistic Impact of Dravet Syndrome: Emerging Insights

Dravet Syndrome: Characteristics, Comorbidities, and Caregiver Concerns:
A Dravet Syndrome Foundation (DSF) Survey

Nicole Villas, MEd

Assessing the Impact of Caring for a Child With Dravet Syndrome:
Results of a Single Center Survey

Kelly Knupp, MD, MSCS, FAES

7:10 PM –7:30 PM
SUDEP in Dravet Syndrome: What Do We Know About Pathophysiology?

Lieven G. Lagae, MD, PhD

7:30 PM –7:50 PM
Approaches to Treatment of Dravet Syndrome: What’s on the Horizon?

Joseph E. Sullivan, MD

7:50 PM – 8:00 PM
Live Q&A
Program Chair and Faculty


Upon completion of this activity, participants will be better able to do the following:

  1. Summarize the epidemiology of DS

  2. Identify the burden of illness of DS, including sudden unexpected death in epilepsy (SUDEP)

  3. Cite mechanisms of action and key clinical trial data for therapies for DS in late-stage development

  4. Review emerging preclinical models for SUDEP prevention

CME Credit (Physicians)

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the Elsevier Office of Continuing Medical Education and Miller Medical Communications, LLC. The Elsevier Office of Continuing Medical Education is accredited by the ACCME to provide continuing medical education for physicians.

The Elsevier Office of Continuing Medical Education designates this live activity for a maximum of 1.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.


This activity has been designed to meet the educational needs of health care professionals involved in the diagnosis, treatment, or management of patients with DS.


There is no registration fee for attending this symposium. Pre-registration does not guarantee seating. Arrive early—seating is limited!


Event staff will be glad to assist you with any special needs (physical, dietary, etc.). Please contact Maria DelCegno prior to the live event at


This live activity is supported by an independent educational grant from Zogenix, Inc.


Jointly provided by the Elsevier Office of Continuing Medical Education and Miller Medical Communications, LLC.

Opinions presented during Satellite CME Symposia are those of the speakers and the ACCME-accredited provider and are not a reflection of American Epilepsy Society (AES) opinions, nor are they supported, sponsored, or endorsed by the AES.

You will receive an email confirmation within one business day after you complete the registration.

If you are unable to register online or do not receive your confirmation email after registering (don't forget to check your spam email folder), please email

Click here to register
CME Dinner Symposium

Course summary
Available credit: 
  • 1.50 AMA PRA Category 1 Credit(s)™
  • 1.50 Non-physician
Course opens: 
Course expires: 
Event starts: 
12/03/2017 - 6:00pm
Event ends: 
12/03/2017 - 8:00pm

Available Credit

  • 1.50 AMA PRA Category 1 Credit(s)™
  • 1.50 Non-physician

Accreditation Period

Course opens: 
Course expires: 
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