The Lysosomal Disease Exchange: Optimizing Diagnosis and Future Management

The Elsevier Office of Continuing Medical Education (EOCME) and Excerpta Medica would appreciate your opinion, to assist us in the evaluation of the effectiveness of this activity and to identify your ongoing educational needs.

Please complete this evaluation form. You must complete this evaluation form to receive acknowledgement for completing this activity.

First Name

Last Name

Academic Degree

Address

City

Postal Code/Zip Code

Country

Email

What is your specialty?

What is your specialty? Other

Which of the following best describes your current professional practice?

Private

Hospital

Academic

Other

Which of the following best describes your current professional practice? Other

How many years have you been in practice?

How many patients with lysosomal disease do you typically see each month?

Please rate the extent to which this activity met the following objectives:

	Poor	Fair	Good	Very good	Excellent
Recognize the consequences of delayed diagnosis and treatment initiation for patients with lysosomal disease	Recognize the consequences of delayed diagnosis and treatment initiation for patients with lysosomal disease - Poor	Recognize the consequences of delayed diagnosis and treatment initiation for patients with lysosomal disease - Fair	Recognize the consequences of delayed diagnosis and treatment initiation for patients with lysosomal disease - Good	Recognize the consequences of delayed diagnosis and treatment initiation for patients with lysosomal disease - Very good	Recognize the consequences of delayed diagnosis and treatment initiation for patients with lysosomal disease - Excellent
Describe the key diagnostic algorithms for the evaluation of lysosomal disease, and discuss genotype–phenotype correlations	Describe the key diagnostic algorithms for the evaluation of lysosomal disease, and discuss genotype–phenotype correlations - Poor	Describe the key diagnostic algorithms for the evaluation of lysosomal disease, and discuss genotype–phenotype correlations - Fair	Describe the key diagnostic algorithms for the evaluation of lysosomal disease, and discuss genotype–phenotype correlations - Good	Describe the key diagnostic algorithms for the evaluation of lysosomal disease, and discuss genotype–phenotype correlations - Very good	Describe the key diagnostic algorithms for the evaluation of lysosomal disease, and discuss genotype–phenotype correlations - Excellent
Become aware of the emerging treatment strategies and investigational therapies for lysosomal disease, and their potential in optimizing clinical management	Become aware of the emerging treatment strategies and investigational therapies for lysosomal disease, and their potential in optimizing clinical management - Poor	Become aware of the emerging treatment strategies and investigational therapies for lysosomal disease, and their potential in optimizing clinical management - Fair	Become aware of the emerging treatment strategies and investigational therapies for lysosomal disease, and their potential in optimizing clinical management - Good	Become aware of the emerging treatment strategies and investigational therapies for lysosomal disease, and their potential in optimizing clinical management - Very good	Become aware of the emerging treatment strategies and investigational therapies for lysosomal disease, and their potential in optimizing clinical management - Excellent

How often do you CURRENTLY DO each of the following?

	Never	Rarely	Sometimes	Most of the time	Always	N/A
Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Never	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Rarely	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Sometimes	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Most of the time	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Always	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - N/A
Implement screening programs to identify Fabry patients and carriers	Implement screening programs to identify Fabry patients and carriers - Never	Implement screening programs to identify Fabry patients and carriers - Rarely	Implement screening programs to identify Fabry patients and carriers - Sometimes	Implement screening programs to identify Fabry patients and carriers - Most of the time	Implement screening programs to identify Fabry patients and carriers - Always	Implement screening programs to identify Fabry patients and carriers - N/A
Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Never	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Rarely	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Sometimes	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Most of the time	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Always	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - N/A

How often do you NOW PLAN TO DO each of the following?

	Never	Rarely	Sometimes	Most of the time	Always	N/A
Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Never	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Rarely	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Sometimes	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Most of the time	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - Always	Implement cardiovascular imaging strategies to aid in the early identification of patients with Fabry disease - N/A
Implement screening programs to identify Fabry patients and carriers	Implement screening programs to identify Fabry patients and carriers - Never	Implement screening programs to identify Fabry patients and carriers - Rarely	Implement screening programs to identify Fabry patients and carriers - Sometimes	Implement screening programs to identify Fabry patients and carriers - Most of the time	Implement screening programs to identify Fabry patients and carriers - Always	Implement screening programs to identify Fabry patients and carriers - N/A
Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Never	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Rarely	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Sometimes	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Most of the time	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - Always	Utilize a multidisciplinary approach to maximize supportive care for patients with Fabry disease - N/A

Please provide us with feedback regarding your experience of the activity:

	Strongly disagree	Disagree	Neutral	Agree	Strongly agree
Overall, the activity met my learning needs	Overall, the activity met my learning needs - Strongly disagree	Overall, the activity met my learning needs - Disagree	Overall, the activity met my learning needs - Neutral	Overall, the activity met my learning needs - Agree	Overall, the activity met my learning needs - Strongly agree
The information presented was without promotional or commercial bias	The information presented was without promotional or commercial bias - Strongly disagree	The information presented was without promotional or commercial bias - Disagree	The information presented was without promotional or commercial bias - Neutral	The information presented was without promotional or commercial bias - Agree	The information presented was without promotional or commercial bias - Strongly agree
The content provided a fair and balanced coverage of the topic	The content provided a fair and balanced coverage of the topic - Strongly disagree	The content provided a fair and balanced coverage of the topic - Disagree	The content provided a fair and balanced coverage of the topic - Neutral	The content provided a fair and balanced coverage of the topic - Agree	The content provided a fair and balanced coverage of the topic - Strongly agree
The content was scientifically rigorous and evidence-based	The content was scientifically rigorous and evidence-based - Strongly disagree	The content was scientifically rigorous and evidence-based - Disagree	The content was scientifically rigorous and evidence-based - Neutral	The content was scientifically rigorous and evidence-based - Agree	The content was scientifically rigorous and evidence-based - Strongly agree
The event provided appropriate and effective opportunities for active learning (e.g. discussion, Q&A)	The event provided appropriate and effective opportunities for active learning (e.g. discussion, Q&A) - Strongly disagree	The event provided appropriate and effective opportunities for active learning (e.g. discussion, Q&A) - Disagree	The event provided appropriate and effective opportunities for active learning (e.g. discussion, Q&A) - Neutral	The event provided appropriate and effective opportunities for active learning (e.g. discussion, Q&A) - Agree	The event provided appropriate and effective opportunities for active learning (e.g. discussion, Q&A) - Strongly agree
The quality of the educational process was satisfactory and appropriate	The quality of the educational process was satisfactory and appropriate - Strongly disagree	The quality of the educational process was satisfactory and appropriate - Disagree	The quality of the educational process was satisfactory and appropriate - Neutral	The quality of the educational process was satisfactory and appropriate - Agree	The quality of the educational process was satisfactory and appropriate - Strongly agree
The event promoted improvements or quality in health care	The event promoted improvements or quality in health care - Strongly disagree	The event promoted improvements or quality in health care - Disagree	The event promoted improvements or quality in health care - Neutral	The event promoted improvements or quality in health care - Agree	The event promoted improvements or quality in health care - Strongly agree
The information provided with regard to faculty financial relationships met my needs for disclosure	The information provided with regard to faculty financial relationships met my needs for disclosure - Strongly disagree	The information provided with regard to faculty financial relationships met my needs for disclosure - Disagree	The information provided with regard to faculty financial relationships met my needs for disclosure - Neutral	The information provided with regard to faculty financial relationships met my needs for disclosure - Agree	The information provided with regard to faculty financial relationships met my needs for disclosure - Strongly agree
The speakers were knowledgeable and presented the information clearly	The speakers were knowledgeable and presented the information clearly - Strongly disagree	The speakers were knowledgeable and presented the information clearly - Disagree	The speakers were knowledgeable and presented the information clearly - Neutral	The speakers were knowledgeable and presented the information clearly - Agree	The speakers were knowledgeable and presented the information clearly - Strongly agree
The format of the discussion was relevant and enhanced my knowledge of the subject	The format of the discussion was relevant and enhanced my knowledge of the subject - Strongly disagree	The format of the discussion was relevant and enhanced my knowledge of the subject - Disagree	The format of the discussion was relevant and enhanced my knowledge of the subject - Neutral	The format of the discussion was relevant and enhanced my knowledge of the subject - Agree	The format of the discussion was relevant and enhanced my knowledge of the subject - Strongly agree

This educational activity will result in a change in my practice behavior.

Yes

No

N/A

If so, what will you change?

Based on your participation in this activity, choose the statement(s) that apply:

I gained new strategies/skills/information that I can apply to my area of practice

I plan to implement new strategies/skills/information in my practice

I need more information before I can implement new strategies/skills/information in my practice

This activity will not change my practice, as my current practice is consistent with the information presented

This activity will not change my practice, as I do not agree with the information presented

What barriers do you see to making changes in your practice?

Please provide details on any comments related to this activity:

How did you hear about this activity? Other

After attending this symposium, do you think there are still gaps in education on the management of Fabry disease? If so, could you please suggest some topics that need to be addressed in the future?

Attestation to time spent on activity:

The Elsevier Office of Continuing Medical Education designates this live activity for a maxiumum of 1.0 AMA PRA Category 1 Credit^TM.

I participated in this CME activity and claim _________ credit(s).

0.25

0.5

0.75

1.0

The EOCME and Excerpta Medica thank you for your participation in this activity. All information provided improves the scope and purpose of our programs.

WORLDSymposium has reviewed and approved this Satellite Symposium as appropriate for presentation as an independent educational activity held in conjunction with WORLDSymposium™ 2018. The Satellite Symposium is not part of the official WORLDSymposium 2018 program, and WORLDSymposium 2018 does not approve or endorse any commercial products or services discussed during the Satellite Symposium or offered for sale by the corporate supporter of the Satellite Symposium. This Satellite Symposium is not approved for CME by WORLDSymposium 2018. This Satellite Symposium is approved for CME credit by EOCME.

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The Lysosomal Disease Exchange: Optimizing Diagnosis and Future Management